The following comments were recently exchanged on
Diversity World’s online discussion group on self employment
for people with disabilities. We are reprinting them here
because they contain some valuable insights, perspectives
and advice that will be useful to some of our readers.
Margo is from British Columbia, Canada. She has worked
for several years in the disability field as a community
outreach/service provider and advocate and has been a
regional/national spokesperson regarding employment issues
affecting people with disabilities. She was an advisor in
setting up a self-employment program for people with
disabilities and provides entrepreneurial advice and support
for people who have or are starting businesses.
(Coincidently, shortly after she wrote the comments below,
the self-employment program for people with disabilities in
her area had all their funding cut.)
Angela is from Ontario, Canada. A few years ago, she was
involved in setting up a national self-employment program
for people with disabilities. Currently, she provides
support to local people with disabilities who wish to pursue
either traditional employment or self-employment
opportunities.
MARGO: A friend and I were talking about self-employment
for people with disabilities and how it could be a viable
solution to the employment issues faced by some people with
disabilities. We were saying how it had seemed that
self-employment/entrepreneurship was once being heavily
promoted here in Canada in recent years, but the promotion
of it had waned in the last year or two. We were concerned
that the self-employment/entrepreneurship initiatives had
been the "flavour of the week" employment alternative for
people with disabilities, and resources or support would
disappear like they have for other programs that may or may
not have lost their luster. Has anyone noticed this?
ANGELA: That is always a concern, if those promoting the
programs continue to rely on government support. The
programs that get government supports tend to be those that
speak the loudest, and are not necessarily the most
effective programs for self-employment, or even regular
employment.
MARGO: It was even said that the jury was still out on
whether self-employment & entrepreneurship initiatives
overall have effectively address the disability, economic,
and life issues faced by many people with disabilities and
the sustainable income and desired quality of life that they
want. What do you think?
ANGELA: I think this has little to do with
self-employment, or the initiatives set up to support it.
This is the same for those initiatives set up to support
regular employment. I've been a critic, often citing how
many millions of dollars have been launched here in Ontario,
to support people with disabilities in returning to work,
either in a job or self-employment, while income support
policies/regulations continue to remain the same, thereby
actually preventing a person from becoming independent of
income supports. While the employment supports
(opportunities funding, etc.) have been fairly flexible, the
income supports many people with disabilities rely upon,
have not. For example, they severely restrict a business'
growth during the period of time one is on income supports,
restricting a person from ever hiring employees (unlike the
sister program run by the employment insurance program) --
thus keeping the business small, and perhaps, less likely to
take that person off benefits.
Second, the system restricts the amount of money one can
make before they are substantially clawed back in benefits.
Here, in Ontario, a single person can earn $160 each month,
whether this be in a job, or in a self-employment situation,
and after that point, they lose 75% of whatever net earnings
they have, from their benefits. (This rate has been that way
for as long as I can remember working for people with
disabilities -- and I am in my 40s!). With many people with
disabilities depending on such benefits for drugs, medical
care, etc., there is too much of a strong argument not to
exit the 'system'. To me, the argument lies in systems
change, not in whether or not people should use employment
or self-employment supports to get back in the workforce,
and whether employment or self-employment supports as they
are today, are actually effective. I think the real test
would come once there is system change, and a view to
regulations being more flexible in allowing people to work,
and to return to the income supports if they left (at least
a 5-year, as opposed to a 1-year time limit).
MARGO: Given that this is a listserv for self-employment
for people with disabilities, my question to entrepreneurs
with disabilities, is: If you had to do it all over again,
would you want to be an entrepreneur again? Has it
successfully addressed your reasons for becoming one? If you
had to do it all over again, what would you have done
differently?
ANGELA: To be honest, I preferred being an employee, at
least I knew what I was going to be paid each week, and had
medical and drug benefits, which did not impoverish me. With
a family, it is very hard to be self-employed. I had tried
to find secure full-time employment, but my success in that
department has been limited. So, rather than have no income,
and be left to the mercy of the state, so to speak, I prefer
to have a self-generated income, in the absence of job
opportunities. Being well-educated is an advantage in
self-employment; however, in regular employment, I found
this to be a severe disadvantage.
MARGO: What advice would you give people with
disabilities who are considering going into business for
themselves? And for those who are considering becoming
entrepreneurs, what are your greatest concerns about
actually becoming one? I think this would be an interesting
discussion.
ANGELA:
1. Be realistic. It takes time for a business to work. It
takes some research before one is certain that the business
has marketability. Check out all options for funding, as
there are many available. Also, realize that you have to
start off small, in order for the business to eventually
support you.
2. Be active. Learn about how policies and regulations in
income support programs affect the viability of your
business, and be outspoken about this. Visit your elected
officials. Tell them what you think you need in order to be
able to actually make money from your business, while being
able to cover all your other expenses you would not normally
have, if you did not have a business.
3. Work with a support person or organization that
specializes in the needs of people with disabilities and is
familiar with the legislation, and is willing and able to go
to bat for you if you run into any problems. This is what I
do. I've gotten people funding for their start-up costs,
training, support services, disability-related
accommodations, etc. through the various government programs
available; I also advocate directly on people's behalf with
income support services, and have been able to get other
concessions for people, as well as have spent a considerable
amount of my time lobbying, etc. to get changes made in the
system.
4. Get involved with an association or network of other
people with disabilities. I work informally with a number of
people with disabilities who have been working in their own
businesses, doing various activities. I have worked to
create a circle of services, through which many businesses
in the community can utilize, both disabled and
non-disabled, to enable maximal funding to flow to those
businesses and groups that are largely controlled by people
with disabilities, where possible. For example, if I know a
graphic artist that has a disability, and I have a client
that needs to get business cards drawn up, I prefer to send
that person to the graphic artist that I know, so that
person has more work, than to send them to traditional
services, often more expensive and not run by people with
disabilities.
5. Be flexible. Don't expect too much, or too little. If
you have a need to take a break, take one. If you feel you
can handle that larger order, do it. However, assess your
circumstances, and other work you are doing before you
commit to any further work, so that you will always be able
to provide good service.
MARGO: As someone who has cerebral palsy, I believe
people with disabilities' chances of success and to sustain
a career in self-employment improves when they have other
forms of financial support and other backups.
ANGELA: That is always the ideal, but not all of us have
that ideal. For example, I do not have the fortune of having
a spouse work in a real job, with real benefits or anything
else, so I am on my own in a sense. However, my thoughts on
this would be, that if I did not take the initiative to move
on this business, my family would receive no income.
MARGO: It also improves when relevant stakeholders and
disability support programs, policies, and regulations are
truly conducive to and supportive of their entrepreneurial
ambitions [and I would check to see if they were (Well that
would be dependent if everything was honestly laid out in
front of me, and if I had asked all the right questions.)].
After all, no person with a disability purposely goes into
entrepreneurship seeking to have their entire current and
future economic, disability, and quality of life situations
threatened – it is to improve one's situation not to make
things worse. It's not about taking chances, but being able
to take calculated/affordable "risks", but in my estimation,
for many people with disabilities, what they do have and
need now, they cannot risk losing at any cost – even if it
was an attempt to improve their situation – like starting a
business. That in itself is a very real and understandable
disincentive to seek self-employment.
ANGELA: That is why we need to *educate* and work with
our elected representatives, and senior level government
workers, to *make* them understand what works and what does
not work for *you*, as a person with a disability. Policies
and regulations are created by people who do not have to
rely on income supports, nor are they created with the idea
that people on income supports would even want to work, or
could work themselves off such supports some day. It is up
to us to change this way of thinking; it is a lot of hard
work, and will take a lot of organizing, and disability
groups working together (a real treat), to make this happen.
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